But I went to two sessions about research on how to improve the lives of people with dementia and their caregivers. It turns out that caregiving is as much a science as it is an art! Here's what I learned:
· A set of programs known as the Seattle Protocols focuses on how to reduce the depression, agitation, sleep disturbances, and physical problems sometimes associated with dementia. The methods and techniques that make up the Seattle Protocols, including exercise programs and "behavioral management" techniques, have been tested in clinical trials, and are now taught to facilities-based and home-based caregivers.
· Preliminary research shows a combination of measures such as changes in diet, reducing light in bedrooms at night, scheduling enjoyable activities during the day, and limiting daytime napping appear to reduce sleep disturbances in people with dementia.
· There's no substitute for the human touch. But technology, if adapted to the needs of people with mild dementia, can make everyday living easier. Even for people with more severe memory loss, "Intelligent Home" technology can guide them through everyday activities such as hand washing after using the toilet or remembering to take medicines, and can recognize an emergency and call for help. Research on the design and use of this type of technology is in the early stages.
· Scientists are also studying whether Web-based communication can extend the positive results of short-term training for caregivers.
· Clinical trials show that people with mild dementia can still learn, and can maintain improvements in functionality gained from participating in scientifically designed cognitive rehabilitation programs.
· Antipsychotic medicines are used to manage dementia-related agitation and anxiety, but they aren't always effective, and any benefits are often outweighed by their serious side effects. Research shows that nondrug treatments such as aromatherapy, bright light therapy, and caregiver education may be effective alternatives.
This kind of research doesn't usually make the headlines. But for millions of people with memory loss and their caregivers, the science of caregiving is as important as the search for a cure.
Mona Johnson
The Tangled Neuron